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Author Topic:   MVPS goofed up my periods
milkmommy
Member

Posts: 262
From: Salt Lake City, Uath
Registered: Mar 2001

posted August 10, 2002 02:23 PM     Click Here to See the Profile for milkmommy   Click Here to Email milkmommy        Reply w/Quote
It's now four days into my period and as usual I feel horrible. I always start feeling bad on day four of AF. I guess it's because the progesterone and estrogen are at their lowest. I always feel my best the 5 days before ovulation.

Here is something to think about with this tread of conversation about hormones:
It seems like hormones probably have a big role in MVPS as the majority of us here on this message board are women in our menstruating years. If hormones don't play a role, where are all the men, the youngsters, the older generation??? 80% of people with MVPS have Seasonal Affective Disorder(SAD) and the vast majority of people with SAD are women who are having periods. After women go through the change of life the ratio of men to women having SAD evens out.

Karen

spiv8
Member

Posts: 695
From: Indiana
Registered: Mar 2002

posted August 10, 2002 11:46 PM     Click Here to See the Profile for spiv8   Click Here to Email spiv8        Reply w/Quote
I'm 48 and had a hysterectomy at age 30.
Have had symptoms since about age 23.
I believe hormones play a role but anxiety is the driver in MVPS.
I just read a post about people having more symptoms on the weekends, doesn't this tell you guys something? Read Claire Weekes book, Hope & Help for your Nerves.

Susie

beano
Member

Posts: 133
From: seattle,wa,usa
Registered: Jul 2002

posted August 11, 2002 12:18 AM     Click Here to See the Profile for beano        Reply w/Quote
you said it- stress/anxeity is the driving force. an imbalance of hormones on the body helps to feul stress and emotions. its all connected.
finding a way to overide all this is the key.

Bluebelle
Member

Posts: 33
From: maitland, FL, USA
Registered: Aug 2002

posted August 11, 2002 12:45 AM     Click Here to See the Profile for Bluebelle        Reply w/Quote
... just an interesting sidenote...

I recently read that relatively small, and even, numbers of males and females are affected by MVP at young ages and older ages. I have a male friend who was diagnosed around the age of 10... but his valve was defective and he had to have surgery... he DID NOT have the syndrome. The majority of sufferers of MVPS are females of menstrual age. Between the ages of roughly 16-50, people with MVPS are predominantly, and, in fact, overwhelmingly female...
makes one think, huh?
~Jacqui

spiv8
Member

Posts: 695
From: Indiana
Registered: Mar 2002

posted August 11, 2002 10:42 AM     Click Here to See the Profile for spiv8   Click Here to Email spiv8        Reply w/Quote
Dr. Walt Stoll says that you could have a heart transplant and still have MVPS. This is because it has nothing to do with your heart. It is your autonomic nervous system that is out of wack. The fact that more women suffer from this is, to me, the same reason that more men are in jail.
Men act out their traumas, women hold them in. This is also why more women are treated for depression. It is also common knowledge that MVPS usually begins after a severe life trauma. Read about anxiety, this will help your symptoms ten fold. Coping effectively with the stuff life throws at you is your key, I'm convinced. Throw in a lousy diet, not enough water, a little caffine and alcohol and your whole system is messed up. There are people on this forum that are still smoking, but complain about their symptoms.
There is truly little in this world you can control, but you can control you. And you can learn ways to cope with anxiety.
The good people on this forum have taught me all these things. But I don't seen posts from them anymore. Hey, Opus88, Purple, Jean, Matty, DeeDee, Medlink where have you gone. I miss you and your wisdom.
Susie

Deidra
Member

Posts: 36
From:
Registered: Jul 2002

posted August 11, 2002 11:41 AM     Click Here to See the Profile for Deidra        Reply w/Quote
Susie-

I just read your post especially the sentence about MVPS usually begins after a major life trauma. Mine was diagnosed when my brother was dying of cancer in 1989. The only symptom I had was trouble breathing. My Doctor did tell me that it is usually brought on by stress. When my mother was dying also of cancer I started having palpatations I took medication and they went away.

What I don't understand is I was diagnosed in 1989. In 1982 my first son died only a few short hours after he was born-that was an extremely stressful time. My second son was born in 1984-I had to have an emergency c-section due to very high blood pressure and toxemia. In 1986 I went through a divorce and had to struggle financially. About 7 years ago I had a really bad job-my supervisor treated me terribly and I was also dealing with a very bad relationship-I had problems both at work and at home. But during all these crisis the MVPS never flared up.

Now I am at a good point in my life-I have a great job, work with wonderful people, my son is starting college in a couple of weeks and I am very healthy but I have started having the breathing problems again along with some dizziness, and of course the fatigue that I have had for 4 years. I am having an echo gram Tuesday to see if there have been any changes.

Any ideas?

opus88
Member

Posts: 1731
From: southern AL
Registered: Apr 2002

posted August 11, 2002 12:39 PM     Click Here to See the Profile for opus88   Click Here to Email opus88        Reply w/Quote
Hi, Gang!
As we are experiencing in this discussion, the human body is not an exact science.
We already know that what works for one may be a nightmare for another. Some of us were better while taking birth control pills or hormone therapy, some better before or after or just plain without them.
Some of us believe anxiety truly is the entire root of the physical problems, some of us believe anxiety is a result of the physical imbalances.
I think this gives us a better understanding of why doctors are unable to help us satisfactorily. They are just as confused as we are.
I believe this message board offers us something vitally important to our MVPS-affected lives. The ability to talk to others who are passionate about our health and unwilling to just accept the sometimes disabling symptoms. The chance to voice our opinions and ideas and musings, which in turn may spark that proverbial lightbulb for someone else. It is this sense of community that will help us bring the symptoms under control and hopefully one day even eliminate them.
I don't have any answers to the hormone question except to say that I believe very much that it is related - and not just the female hormones, but the entire hormonal system for both males and females. I also believe that serotonin does play a big part in this.
Maybe the true heart of research (no pun intended!) for MVPS needs to go to the world of endocrinology instead of cardiology, with a strong partnership with neurophysiology.
In any case, this particular subject is an excellent discussion that I hope will continue.

opus88
Member

Posts: 1731
From: southern AL
Registered: Apr 2002

posted August 11, 2002 12:45 PM     Click Here to See the Profile for opus88   Click Here to Email opus88        Reply w/Quote
Thanks, Susie! It's nice to be missed! I've been on a short getaway, but I'm back into my routine again starting tomorrow. Sigh.
As I catch up on what I've missed, I especially loved to see the common sense in your comment: "There are people on this forum that are still smoking, but complain about their symptoms. There is truly little in this world you can control, but you can control you."
I do get frustrated hearing people complain over and over about the symptoms and ask for help, yet admit that they are not really doing anything to help themselves. This syndrome is a huge burden for each of us to endure, and things such as insurance, finances and even emotional support are not always available. But things like quitting smoking and caffeine are FREE, and actually will save money. I had to kick the sugar habit years ago - it was sooooo difficult (and sometimes still is), but I did it. I wish I could help everyone do those things. But the reality is that we MUST do it ourselves. And anybody can do anything IF they put their minds to it and quit finding excuses. I was glad to hear you put a voice to my thoughts! You go, girl!

spiv8
Member

Posts: 695
From: Indiana
Registered: Mar 2002

posted August 11, 2002 02:14 PM     Click Here to See the Profile for spiv8   Click Here to Email spiv8        Reply w/Quote
Deidra, Dr. Walt Stoll explains it the best. In his book he talks about the ability of the human body to heal itself. He also talks about quantity of stuff. He uses a bar graph to illustrate that we can handle so much and then it spills over. It is the spill over that we get symptoms from. If you look on the posts here you will see that very few people come from loving nurturing backgrounds. Maybe by the time we are in our twentys our ability to carry the baggage is used up. It is kinda of like the caffine thing. Some people can tolerate it for years and then all of a sudden (they think it is all of a sudden) they have reactions to it. Your symptoms don't come on all of a sudden, they are a result of too much piled on top of each other. With all the sorrow and greive you had experienced in the past maybe you just didn't have room for one more thing. I know when my son went to college I was sad, it was a lot like losing him. And I believe I went through sort of a greiving process. When your symptoms are at their worse, look long and hard at your life. Do you have things in your history that you maybe have not let go of, or dealt with. We have triggers for our memories. You can be looking at your son and remembering the losses in your life, even though it is not the same the, you could be feeling this deep in side as a loss. I have had so many ups and downs in my life that whenever I am having an up I get paranoid about when the down is going to hit. Therefore it is kinda hard to enjoy the up.
Just my thoughts.
Susie

spiv8
Member

Posts: 695
From: Indiana
Registered: Mar 2002

posted August 11, 2002 02:29 PM     Click Here to See the Profile for spiv8   Click Here to Email spiv8        Reply w/Quote
Sorry, my brain is quite active now. I think the anxiety/hormone thing is a circle. I have learned from this site that we MVPSers tend to be low on magnesium. But did you know that stress/anxiety causes magnesium to be depleted. So you can control the magnesium by putting it back into your body, but how much good will it to if you don't do something about your stress. And stress doesn't have to be catastrophic. It doesn't have to mean the death of a loved one. It can mean something that doesn't really exist but you think it does. Example, I am a rape survivor. That was 21 years ago. You would think after all the therapy and time passed I would be over it. But the other day a man was to come to my house and give me an estimate for landscaping maintanence. I was thrown into a panic because having a man, any man, in or at my house when I am alone sets me off. As it turned out he was no threat and he never gave me a reason to feel threatened but my trigger said he was.
I work on my anxiety everyday. Its almost like there are two of me and I have to talk to the scared me and calm her down. I have to tell her was is not really scary.
You know they say people with phobias are highly intelligent. That is due to our very creative minds, we have such an incredible ability to create and embellish that we do it with things that scare or sadden us.
Forget your heart, it is not your problem (unless you have a different kind of problem) read about anxiety and you will see what I mean. Suffering from anxiety doesn't mean you are weak, or mental or your problems are all in your head. Anxiety is real and becoming epidemic from what I read. We live in a society that can be frightening.
I truly hope this helps someone. It has certainly helped me and I have suffered from chest pains, palpatations, shortness of breath and everything else mention in this forum. But I finally gave in and stopped blaming the docs and looked at myself. And I feel so much better.
Susie

Deidra
Member

Posts: 36
From:
Registered: Jul 2002

posted August 11, 2002 03:46 PM     Click Here to See the Profile for Deidra        Reply w/Quote
WOW Susie! or should I call you Dr. Susie

You have really made me think. You are right about coming from the nuturing home-I didn't. My father was a person that was there in body only. We were made to feel that children should be seen and not heard. We were also very poor. My mother was just the opposite she was a wonderful person.

As far as my son going to college he will still be living at home and I am extremely proud of him. He will be the first person in my immediate family to go to college. I went through the grief and anxiety when he turned 16 and started driving. I'm really excited about him going to college.

Since my mother passed away I am not as close to my sisters as I once was-we hardly speak-not because we're mad it's just that we do not have anything in common. I have also lost 2 friends in the past 4 years (friendship was disolved) and I had been friends with them since I was 21. I am now 44. I guess when I look at that way I have had a lot of grief in my life and maybe now it has built up and manifesting in the form of all these symptoms I'm having.

It sure gives me alot to think about.

[This message has been edited by Deidra (edited August 11, 2002).]

beano
Member

Posts: 133
From: seattle,wa,usa
Registered: Jul 2002

posted August 11, 2002 06:38 PM     Click Here to See the Profile for beano        Reply w/Quote
Spiv8- hello
i liked your quote above " Throw in a lousy diet, not enough water, a little caffine and alcohol and your whole system is messed up. "
thats exactly what happened to me but instead a whole LOT of caffiene for 6 years- no water- and lots of alcohol-and a lousy diet eaten once a day.

no wonder the MVP crept up on me- it had to! mix all that with extreme stress/anxiety + hormone problems and you have my formula.

the body can only take so much before getting screwed up. I am totally turned around in every department and strting to feel better- its not rocket science- just good sense. I have always wanted to turn my life in this direction for SO MANY WASTED YEARS- but i was too unmotivated and tired. It took this MVPS to finally scare me into changing- and i am so happy for that! no more "control" over my body with stimulants and depressants- i feel so much better. I can say- thats one good thing about this whole MVPS mess- it hepled me change my lifestyle for the best!
yee-haw!

Deidra
Member

Posts: 36
From:
Registered: Jul 2002

posted August 11, 2002 07:05 PM     Click Here to See the Profile for Deidra        Reply w/Quote
Susie-

It's me again-what is the name of the book you referred to by Dr. Walt Stoll? That should prove to be some interesting reading.

It sounds like you have had your share of tragedies also. I couldn't even begin to imagine what you have gone through. I guess most people think that after a tragic event such as what you have been through or a death that you should grieve for awhile and then get over it but that's not the case it will effect you probably the rest of your life. People that have never gone through any tragedies are probably the people that feel that way. When my mother was dying I had a male friend who has really never suffered any real pain in his life the only support he could offer me was to say "Just hang in there".

Also, I would like to ask how many of you have support from family or friends? Maybe that makes a difference also-I don't have any support.

spiv8
Member

Posts: 695
From: Indiana
Registered: Mar 2002

posted August 11, 2002 08:53 PM     Click Here to See the Profile for spiv8   Click Here to Email spiv8        Reply w/Quote
Please don't call me Dr. I have just been doing the MVPS thing for so long without knowing it was MVPS. The world around me had me convinced I was nuts. Then I found this site and starting reading everything I could get my hands on. The veterans here are smart and helpful, just don't get on here and complain, ask for advice.
My theory about the support thing is - most of us never had it so we went through life faking it. And finally we had our reserves filled and bingo - symptoms. Now what do we do, no one will listen, no one to comfort us, so we just keep on worrying, that is what we know how to do. We have spent a lifetime taking care of anything and everything around us but we don't know how to take care of ourselves. I like how Dr. Phil McGraw puts it - Everybody needs a soft place to fall - I never had one. Still don't.
But what I do do is take care of me, I nuture me, I feed me good food, I make sure I have plenty of water to drink, see to it I get enough sleep and hold myself back so that I don't get over extended with other peoples problems. I also do things I enjoy, things that relax me. There is no one in this world that is going to take care of me expect me.
I come to this forum on a daily basis to see if Opus88 has found some more information for us, I see if DeeDee is in a comical mood to give me a tickle. But mostly I have learned that I can't help anyone until I help me first.
Walt Stoll has a website where you can order his book. www.askwaltstollmd.com
If you want to talk some more, my e-mail is posted.

Read, read, read.......

Susie

Patsi
Member

Posts: 144
From: Muncie, Indiana USA
Registered: May 2002

posted August 11, 2002 08:54 PM     Click Here to See the Profile for Patsi   Click Here to Email Patsi        Reply w/Quote
Susie,
Excellent topic here, I think you are definitely on the right tract with this one. I don't think we have any idea how much anxiety contributes to our difficulties with this syndrome.


Opus,
So glad you are back with us, I missed your input. You always have so much information for us.

------------------
Patsi


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