|
 MVPSupport
 Symptoms Discussions
 MVPS goofed up my periods (Page 1)
|
 UBBFriend: Email This Page to Someone! This topic is 3 pages long: 1 2 3 |
next newest topic | next oldest topic |
| Author | Topic: MVPS goofed up my periods |
|
milkmommy Member Posts: 262 |
posted July 26, 2002 07:05 PM
  
Looking back I can see that my periods started becoming "different" as the MVPs developed. When I was 33 I noticed that my cycles were becoming less regular. I started developing MVPs at that same time. The more symprtoms I get, the more goofed up my cycles become....or it is....the more goofed up my cycles become the more symptoms I get? I now have cycles where I skip ovulation and have a lot of spotting. I'm sure I'm perimenapausal. Which came first, the chicken or the egg. Anybody else notice a connection? |
|
Bluebelle Member Posts: 33 |
posted August 05, 2002 11:43 PM
wow... I registered on this board just to reply to this. I was diagnosed with MVPS this summer, and I still have severe shortness of breath. I never had symptoms until I started taking birth control pills for irregular periods, and the symptoms have only ever gone away when stop taking them or I get regular periods on my own. They get worse whenever I engage in strenuous activity and lose my period again. I've always wondered if there was a connection... have you had problems with the pill... or asked your doctor? |
|
DeeDee Member Posts: 0 |
posted August 06, 2002 08:51 AM
Milk I have the same problem...Im 23 and I get one one month and then I dont get one for two and the more delayed they are the more pain I have when they do happen. I tried going on the pill to correct mine because the doctor said it was the thing to do and then I started spotting all the time and having really bad chest and back pain...also it made my BP higher so I quit them. Our whole system seems to be screwy with MVPS so I would think its greatly possible for us to experience even mother nature problems and imbalances over time. |
|
milkmommy Member Posts: 262 |
posted August 06, 2002 10:32 AM
Bluebelle and DeeDee, Thanks for replying. I posted the question,... it seems like weeks ago. I was sure I was the only one with period related problems since I had no replies up until now. I have always looked into the past to try and determine if I did anything different that may have caused MVPS to develop. I can remember having problems with spotting about 10 years ago and the Dr. telling me that it was low progesterone and giving me progesterone shots. Then I started to spot all the time so he did three D+C's. He also put me on Birth Control(BC's). I either started developing MVPS while on BC'S, or after I came off them. I can't remember which since it was about 8 years ago. I had always suspected that the BC's may have brought on MVPS by messing up my hormones. Just in the last few days though I wondered if coming OFF BC's may have allowed the symptoms to start. It's so hard with MVPS so figure which caused what and it's rather scary to try something to fix it as it may make MVPS worse. I started progesterone cream this last cycle and about an hour after the first application I noticed the anxiety going away and I was left feeling soo good the rest of the day so I did it every day for the 2nd 1/2 of my cycle. I noticed that after a week some of my symptoms were flaring do to using it. This morning my new cycle began so I stopped. I will try it again next cycle to see if it helps again. I am determine not to be scared out of trying to fix this. Maybe I'm barking up the wrong tree with the hormone idea but I'm going to follow through with it until I know it either works or doesn't. One thing that keeps me going with the hormone idea is that while I was nuring my baby my symptoms cleared up almost completly and came back with avengence after I weaned him, hmm! Karen |
|
kathyann Member Posts: 40 |
posted August 06, 2002 12:30 PM
Finally! I am practically excited here. I started having my symptoms right after I started taking Premarin. I never connected it until we moved and I ran out for 3 months before I could find a new Dr. I noticed that I felt so much better. I started taking Premarin again and then knew for sure it was making me have symptoms . I tried taking compounded hormones (they are made from herbs and are natural) but that still didn't work. I don't have any answers and it was beginning to seem like I was the only one having hormone issues like this, so I thought I was nuts (again, LOL) Now I am wondering if taking the hormones in the first place has made me permanently screwed up. It seems that way. No matter what I do, diet etc. I still will have symptoms. Sometimes I think it is emotional-stress-but then sometimes I think it is cyclical. I can't understand how I could have any PMS stuff-I had a hysterectomy almost 30 years ago and I know my ovaries are like raisins now, poor things! Yet I still get touchy and crave that chocolate every month. Milkmommy-progesterone is the "feel good" hormone, the first Dr. that ever explained to me why I should be taking HRT told me that and I have found it to be true. The trouble with trying to treat low hormone levels is that they are never constant. I think I feel ok 2 weeks out of the month no matter what I do or what is happening then the last two weeks I start having symptoms, some months worse than others. Maybe I should keep a journal? You are fortunate to still be having your periods, then you can tell better when things are going to hit you maybe. It just takes time and vigilance I think. |
|
kathyann Member Posts: 40 |
posted August 06, 2002 12:41 PM
Bluebell For what this is worth, one of my doctors told me that estrogen thickens your blood (hence the worry over blood clots) and I wonder if that aggravates the MVP more? |
|
Jeanie Member Posts: 59 |
posted August 06, 2002 01:32 PM
Hi milkmommy - I'm the opposite of you - I seem to have more symptoms (especially irregular beats and hot flashes) while nursing my kids, and then things kind of settle down to my regular irregularities (what's normal for me)once I wean them. jeanie |
|
DeeDee Member Posts: 0 |
posted August 06, 2002 01:38 PM
Kathy your hilarious...raisins LOL My mom calls hers prunes. They did a complete hyster on her when she was 25 so she's been going through many of the things you both are mentioning with creams and pills. I swear sometimes I wish I could take the pains and frustration from her yet she tells me Im predestined too so not to wish to hard for it. Ive had troubles since I had my daughter a few yrs ago and I notice that my cycles are like the axis my body revolves on. I tried for 2 yrs to base my answer to MVP around my hormone levels and the darn things are so tricky and they change so often that its almost impossible to get a proper dosage of anything to control it. Now I know how some scientists feel when they try to discover cures and methods of treatment. They probably end of in a loop of circles making it impossible to pin point the area they need to address. I will say that birth control pills made matters worse for me though but on the same note, Ive seen some woman swear by them to be the miracle of their existance. I will laugh about your raisin comment for the rest of my day though thanks kathy...lol |
|
kathyann Member Posts: 40 |
posted August 06, 2002 01:43 PM
You are entirely welcome! I will save what has appeared on my stomach for another day. |
|
spiv8 Member Posts: 695 |
posted August 06, 2002 10:16 PM
Okay, I'll bite....what has appeared on your stomach? For what it is worth, I think you guys are on to something here. I had horrible periods starting at age 13. Went on the pill at 18 and had terrible leg pains and went off of them. Had first child at age 21 and second at age 23. Everything got a little better after the first child and after the second child all the pain etc came back two fold. |
|
Bluebelle Member Posts: 33 |
posted August 06, 2002 10:51 PM
I've had amenhorrea several times in the past few years due to low body fat and exercise (I tour the country with an athletic group in the summer)... and I lost my period the first time when I was 14. Since then, I've had progesterone therapy and taken b.c. twice to restart my periods... now it almost seems as if my hormones are so messed up nothing can fix them, but doctors still tell me that birth control is the best option. I can't help but notice all the other people who have had similar experiences with hormones and MVPS, and since doctors don't know much about the disease... wouldn't you think someone would look into the connection? |
|
milkmommy Member Posts: 262 |
posted August 09, 2002 10:05 AM
Bluebelle, you mention that someone should look into a connection between MVPS and hormones. I have the connection, I do believe. Research has shown that the difference between the people with MVP and MVPS is a low leval of seratonin in the brain of those with MVPS. It's well know that problems with women's cycles often is low seratonin. The neurotransmitters in the brain have a very large influence on the hormone cycles. So it makes sense that if you have MVPS, hense..low levals of seratonin in the brain, that you would could have hormone problems too. Now after having MVPS and reading about seratonin for 2 years there is little doubt in my mind that a chemical imbalance in the brain is to blame. My next step in searching for relief is to see a Dr. that knows a lot about the neurotransmitters in the brain and have them all tested. (Back to my original post......hormone imbalances also cause seratonin problems....which came first?) Since I am taking progesteron creme therapy for a few cycles I may be able to rule out that as cure and move onto treating the seratonin imbalance. By the way, some of you may be on, or have tried antidepressants with no luck and wonder about the valididty of seratonin imbalances. I have read that with problems like our only a few antidepressants work. The kind most commonly prescribed by M.D.'s were not on that list. Look up Seasonal Affective Disorder(SAD) on the web to find a list that works for that disorder as 80% of us with MVPS have SAD. Karen |
|
Bluebelle Member Posts: 33 |
posted August 10, 2002 12:26 AM
milkmommy~ thanks for the info! that helps =) |
|
beano Member Posts: 133 |
posted August 10, 2002 02:04 PM
hormones!! yes- i wonder if there is a connection-- seems so! after all hormones regulate all of our bodies functions- helps keep a "balance" I can tell you this-- i have hormone problems because of a brain tumor. when my hormopnes levels dropped this year- thats when i starting getting MVPS (didnt bothere me before). I have low estrogen and have been amenorrheic for 2 years. i am also defiecnt in growth hormone. my thyriod and adrenal hormones are ok- but not estrogen/progesterone and growth hormone. there has to be a connection- many of these hormones effect the heart. Perhaps it is the "imbalance" of these hormones not in a normal functionoing range that tends to ignite symptoms? i used to take BC pills and they didnt bother me- perhaps because my hormones were already low. now i dont take any replacement- and the MVPS has arrived. |
|
milkmommy Member Posts: 262 |
posted August 10, 2002 02:22 PM
It's now four days into my period and as usual I feel horrible. I always start feeling bad on day four of AF. I guess it's because the progesterone and estrogen are at their lowest. I always feel my best the 5 days before ovulation. Here is something to think about with this tread of conversation about hormones: Karen |
This topic is 3 pages long: 1 2 3 All times are ET (US) | next newest topic | next oldest topic |
 |
|
Contact Us | MVPSupport | Privacy Statement
Copyright© 2000-05, Lorelei J. Logsdon. All rights reserved.
Powered by Infopop www.infopop.com © 2000
Ultimate Bulletin Board 5.47e