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MVPSupport
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![]() medic alert bracelet?
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| Author | Topic: medic alert bracelet? |
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NYmomof5 Member Posts: 461 |
Since with MVP, I was told to use antibiotics not just for dental work but also for any surgery. I even had antibiotics with all 5 births of my children. I have often wondered if having the MVP and needing the anitbiotics, should we be wearing medic alert bracelets in case of an accident. In case we couldn't talk and ended up needing emergency surgery or something. Plus in my case I have the moderate/severe regurgitation which I'm sure might have an impact, if I needed emergency surgery etc since I was told I'd need a complete cardiac workup before I could have my arthritic hip replaced. Just a question for something I have thought of from time to time. Thanks for your time in reading this post. |
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Tawny Member Posts: 372 |
I have thought about this also. Not so much about needing antibotics but because I might be wrongly diagnosed as having a heart attack when it is one of the cords that snapped. I too have the moderately severe regurg. It is said that John Ritter died because he was being treated for a heart attack when it was his aortic vale that snapped. Unfortunately he did not know he had a valve problem. It might be good for people with MVP that have regurg to wear a medic alert braclet. Will have to ask my Cardio what he thinks [This message has been edited by Tawny (edited March 20, 2005).] |
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NYmomof5 Member Posts: 461 |
Thanks for your thoughts Tawny. |
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momma1993 Member Posts: 202 |
yes, you should always have a med-alert bracelet(or card) if you have any condition that requires special treatment in an emergency. jennifer |
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nickppatel Member Posts: 220 |
John Ritter was misdiagnosed as having a heart attack (due to his chest pain) and evidently was left untreated. His real problem was not the aortic valve but an aortic dissection, where the inner and outer layers of the aorta separate and blood fills the resulting pocket. It's a life threatening condition, but there's a pretty decent chance of recovery if treated immediately. Based on his family's lawsuit, however, they figured he was having a heart attack, and I'm guessing since the tests didn't show a heart attack (b/c he wasn't having one), they just let him sit or discharged him. Unfortunately, he was in real trouble and as happens all too often with aortic dissections, it went undetected. I don't have Marfan syndrome but I have a similar condition, and while my chances of a dissection are remote, they are there, and so I wear a Medic Alert bracelet. They're cheap and actually not so bad looking - almost like jewelry or a watch. |
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Tawny Member Posts: 372 |
Sorry knew it was something to do with the aorta. Wondering where do you purchase medic alert braclets. There are only large chain drug stores near me and they do not carry them. |
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NYmomof5 Member Posts: 461 |
I was reading the cleveland clinic website about someone who mentioned they wore a medic alert bracelet (which is what made me think of this question)and they said they got theirs from the medic alert website. I have a friend who suffered exactly the same thing as john ritter, just weeks after john ritter died and thank god he survived. |
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nickppatel Member Posts: 220 |
Tawny, You can get the bracelets off the MedicAlert website (I think it's medicalert.org or medicalert.com or something). They let you input all kinds of data about yourself, pick a bracelet, size it, etc. and send it to you. It's pretty inexpensive - like $25 a year or something. NYMomof5 - Curious, does your friend have Marfan? Can you describe him physically? Just curious. |
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NYmomof5 Member Posts: 461 |
no he doesn't have that...he is on the smaller size for a man..probably 5 10 or 5 8 or so....not really skinny, definately not fat..normal weight for his size i'd say. a slight stomach. he had to stop working and really can't do much for fear of dying. but his doctor did tell him he had the same thing as john ritter. |
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Nada Marie Member Posts: 536 |
After all these years, I just recently purchased my medical alert necklace. My major concern was my extreme sensitivity to adrenaline and adrenaline based drugs. On the necklace is engraved all my medical problems/concerns in addition to my name, code and a phone number. The phone number is to reach the Online Medical Registry. There I have recorded my complete medical history, medications, doctors, family, etc. The code allows entry to my records. They link you with the site that can provide you the medical alert "jewelry". If you don't want anything fancy, I think there is a free version. Since you "design" your own data on the jewelry, think it through and plan wisely. (Hope my memory was reasonably in tact.) Nada Marie |
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